Sharon
show transcript
It’s been fantastic! [laughs] I mean, it’s five years, it’s been good. I’ve been able to start living again. Which is a really great thing. I can’t reiterate enough how we didn't know how ill I was, even though through 11 1/2 years I’d had the symptoms of liver disease – in the end I was the colour of a daffodil, and scratching all over and just to not have the symptoms … to have a scar, you know, that’s fine. But if I didn’t tell anybody, nobody would know. They really wouldn’t. And it seems to be working, which is a good thing.
PBC: Primary Biliary Congalitis [Cholangitis]. It used to be Primary Biliary Cirrhosis, but they changed it because everybody was having to tell people that it wasn’t through alcohol. It’s nothing to do with alcohol, it’s an auto-immune disease. But it’s very slow-moving, it’s a chronic disease, but the symptoms are jaundice, itching – literally itching from head to foot, looking like you’ve got fleas. [laughs]
I remember waiting – I think I was already on the transplant list – and I went shopping and people were staring at me because I was so yellow, through jaundice, through the disease, so I remember just leaving all my shopping and walking out of the shop [laughs].
They don’t know how you get it, and the only cure at the moment is a transplant. There are drugs you take to monitor it, and control it, but there isn’t a cure.